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Patients & Caregivers

Amplifying the patient voice to improve the speed and quality of research.
Patients and Caregivers
Patients and Caregivers

The past decade has shown tremendous advances in the care of patients with lung cancer. With improved survival comes the opportunity for patients to become survivors who advocate for research by attending conferences, forming relationships with physicians and care providers, and lending their voices through committee involvement and speaking opportunities.

The IASLC offers several opportunities to help transform patients into patient research advocates and is proud to support and partner with various patient advocacy groups, patient research advocates, and patient advocates from around the globe.

Advocacy Opportunities for IASLC Members

CCTA 2023

Cancer Care Team Award

Nominate your care team for outstanding provision of care.

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Patient Advocacy at WCLC

STARS: Supportive Training Program

Learn how to read journal articles, understand clinical trial design, and communicate effectively with scientists and physicians regarding novel research. Apply to STARS today.

Learn More
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Patient Advocate Committee

Members are eligible to apply for a position on the IASLC Patient Advocate Committee. 

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Advocate Partners

Pair Up With an IASLC Patient Advocate Partner

Contact us at advocacy@iaslc.org to be paired with an advocacy group based on your patient story.

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Become a Member

Contact us about our complimentary membership opportunity for patients and advocates.

Become a member today
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Resources for Reading & Understanding Biomarker Test Results

Biomarker test results are crucial for lung cancer patients to understand, but they are difficult to read due to their complexity. The Advanced Practitioner Society for Hematology and Oncology, the Association of Community Cancer Centers,  the Association for Molecular Pathology, and LUNGevity Foundation created basic and comprehensive education for ALL non-small cell lung cancer patients to understand their results. Materials are available in English and Spanish. Learn more.

Download the Resources Here

Tools for Advocate Involvement

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Journals

Learn about novel research and clinical care advances.
Learn more
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Featured Conferences

Learn about novel research and clinical care advances.
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Share Your Story

Learn about novel research and clinical care advances.
Share
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IASLC Language Guide

The Language Guide was developed to provide guidelines on best practices with common phrases used during presentations at IASLC conferences and within submitted abstracts.
Download

The IASLC is proud to partner with 13+ advocacy organizations to advance the care of patients with lung cancer in patient-driven ways that focus on quality of care and quality of life.

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RAN
Lungevity
LiveLung_Logo
LungFoundationNZ
Pat Adv_GO2 Foundation logo
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Lung Cancer Awareness Month
Global Lung Cancer Coalition
ALK Positive Logo

Thank you to our sponsors

Interested in Learning More with the IASLC for Advocacy Efforts/Program?

Interested in Learning More about the IASLC's Advocacy Programs? Contact us at advocacy@iaslc.org to meet our advocacy-focused staff, share your story, and learn more about advocacy opportunities

Contact Us Now!

Patient Advocacy Spotlights

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A Journey Unlike Any Other: Jill Feldman
"My story started long before I was diagnosed. When I was 13, I had lost two grandparents to lung cancer within weeks of diagnosis and within weeks of each other. Six months after losing his own father, my dad was diagnosed with lung cancer, and he died 3 months later at the age of 41."
Read more
WCLC 2021 Advocates Discuss: Neoadjuvant Chemotherapy-alone vs Chemoradiation followed by Sleeve Resection for Locally Advanced Non-Small Cell Lung Cancer
Read the Spotlight
A Serendipitous Journey to Patient Advocacy
Read the Spotlight
Patient Advocate Lisa Briggs on Impact of Depression, Anxiety, and Distress in Patients With Thoracic Malignancies During the COVID-19 Pandemic
Read Spotlight

Advocates at Work

View Video
Dr. D. Ross Camidge on Teliso-V Monotherpay in patients with previously treated C-Met+ Advanced NSCLC
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Jill Feldman Discusses the IASLC Language Guide
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Ivy Elkins Discusses Real-World Treatment for Patients with EGFR-Positive Lung Cancer
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Ivy Elkins on Pembrolizumab in Combination with Platinum-Based Chemo in Recurrent EGFR/ALK+ NSCLC
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Jill Feldman on Improving Tobacco Cessation Among Individuals Undergoing Lung Cancer Screening
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Amy C. Moore, PhD Discusses the Epical Trial
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Angus Pratt Discusses Medical Assistance in Dying (MAID) in Lung Cancer
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Dr. Upal Basu Roy Discusses Data from the NADIM Trial and from the National Cancer Database regarding the addition of surgery to Chemoradiation of the Chemotherapy