Privacy Policy

This Privacy Policy is divided up into the following sections: 

1. Introduction
2. Children under the age of 13
3. Data IASLC collects about you
4. How IASLC collects your personal data
5. How IASLC uses your personal data
6. How IASLC discloses your personal data
7. Choices about how IASLC uses and discloses your personal data
8. Accessing and correcting your personal data
9. Data security
10. Retention 
11. Changes to our Privacy Policy
12. Contact information
13. Personal data subject to GDPR
    • A. Lawful basis for processing your personal data
    • B. More information about how IASLC discloses your personal data
    • C. International transfers
    • D. Your rights under GDPR
    • E. Complaints

Introduction

This Privacy Policy relates to information we collect on iaslc.org (the “Site”), which is operated by IASLC. It contains important information regarding IASLC’s practices for collecting, using, maintaining, protecting, and disclosing your personal data, and your rights in relation to such personal data.

When you visit our website iaslc.org (the "Site"), and more generally, use any of our services (the "Services", which include the Site), we appreciate that you are trusting us with your personal information. We take your privacy very seriously. If there are any terms in this privacy notice that you do not agree with, please discontinue use of our Services immediately.

This privacy notice applies to all information collected through our Services (which, as described above, includes our Site), as well as any related services, sales, marketing or events.

Please note that, for users located in the European Economic Area (“EEA”), section 13 provides additional information regarding how IASLC processes your personal data and supplements sections 1 through 12. In the event of any inconsistency between the statements made in sections 1 through 12 and section 13, the terms in section 13 will take precedent.

Children under the age of 13

This Site is not intended for children under 13 years of age. No one under age 13 may provide any information to or on the Site. IASLC does not knowingly collect personal data from children under 13. If you are under 13, do not use or provide any information on the Site or on or through any of its features, or register on the Site, make any purchases through the Site, use any of the interactive or public comment features of the Site, if any, or provide any information about yourself, including your name, address, telephone number, email address, or any screen name or user name you may use. If IASLC learns it has collected or received personal data from a child under 13 without verification of parental consent, IASLC will delete that information. If you believe IASLC might have any information from or about a child under 13, please contact IASLC at info@iaslc.org.

Data IASLC collects about you

IASLC collects several types of information, which varies depending on the particular activities carried out. The personal information that we collect depends on the context of your interactions with us and the Website, the choices you make and the products and features you use. The personal information we collect may include the following:

• Such information may include information by which you may be personally identified (“personal data”), such as: 
• Identity data, including your name, username, job title, employer, gender, birth date or similar identifier (“Identity Data”); 
• Contact data, including your postal address, email address and telephone numbers (“Contact Data”); 
• Financial data, including bank account and payment card details (“Financial Data”) (note that although we may collect such data, IASLC itself does not retain Financial Data, which is instead processed by a third-party payment vendor);
• Transaction data, including details about payments to and from you and other details about purchases from IASLC (“Transaction Data”); 
• Technical data, including internet protocol (IP) addresses, your login data, browser type and version, time zone setting and location, browser plug-in types and versions, operating system and platform, and other technology on the devices you use to access the Site (“Technical Data”); 
• Profile data, including information about your communication preferences, feedback and survey responses, any information you may give IASLC when making an inquiry on the Site and feedback forms (“Profile Data”); 
• Usage data, including information about how you use the Site (“Usage Data”); and
• Marketing and communications data, including your preferences for receiving information about our promotional campaigns, fundraising efforts, events, conferences, presentations, courses, programs, meetings or similar activities, news, updates, and other activities of relevance to IASLC or the awareness of lung cancer (“Marketing and Communications Data”).

IASLC also collects, uses and shares aggregated data such as statistical or demographic data for any purpose (“Aggregated Data”). Aggregated Data may be derived from your personal data, but it is not considered personal data since it will not directly or indirectly reveal your identity. For example, IASLC may aggregate Usage Data to calculate the percentage of users accessing a specific feature of the Site.

IASLC does not collect any information about your race or ethnicity, religious or philosophical beliefs, sex life, sexual orientation, political opinions, trade union membership, information about your health, or genetic or biometric data on the Site, nor does it collect any information about criminal convictions and offenses on the Site. 

Please note that, where IASLC needs to collect personal data by law, or under the terms of a contract it has with you, and you fail to provide that data when requested, IASLC may not be able to perform the contract it has or is trying to enter into with you.

How IASLC collects your personal data

IASLC uses different methods to collect data from and about you, including through direct interactions, automated technologies or interactions, and from third parties or publicly available sources.

Direct interactions. You may give IASLC or our service providers your personal data, including Identity Data, Contact Data, Transaction Data, Financial Data, Profile Data, Technical Data and Usage Data, by filling in forms or by corresponding with IASLC or our service providers. This includes personal data you provide when you: 

• make a purchase on the Site; 
• register as a member on the Site; 
• register for a fundraiser, event, conference, presentation, course, program, meeting or other activity on the Site;
• request information, resources, newsletters, publications, materials, or updates about IASLC’s charitable activities, campaigns, fundraising efforts, events, conferences, presentations, courses, programs, meetings or other activities of relevance to IASLC or the awareness of lung cancer;
• complete a survey;
• or provide feedback about IASLC, an event, publication, the Site or other activities or services provided by IASLC.

Automated technologies or interactions. As you interact with the Site, IASLC will automatically collect Technical Data about your equipment, browsing actions and patterns. IASLC collects this data, which may be considered personal data in applicable jurisdictions, by using cookies and other similar technologies. Cookies are small text files which are placed onto your device when you use or access a website. We may use cookies and other similar tracking technologies on the Site, which help us recognize you and your device and store some information about your preferences or past actions. You can set your browser to refuse all or some browser cookies, or to alert you when websites set or access cookies. If you disable or refuse cookies, please note that some parts of the Site may become inaccessible or not function properly. For more information about the cookies we use, please visit our Cookie Policy. 

Third parties or publicly available sources. IASLC may receive personal data about you from various third parties and public sources, including: (i) Technical Data from analytics providers and/or advertising networks, which may be based in the United States; (ii) Contact Data, Financial Data and Transaction Data from providers of technical, payment and delivery services; and (iii) Identity Data and Contact Data from publicly available sources.

How IASLC uses your personal data

IASLC uses personal data to: 

• register you as a member on the Site;
• register you for fundraisers, events, conferences, presentations, courses, programs, meetings or other activities you register for on the Site;
• provide you with information, goods, services, resources, newsletters, publications, materials, or updates about IASLC and our charitable activities, campaigns, fundraising efforts, events, conferences, presentations, courses, programs, meetings or other activities that you request from IASLC;
• manage our relationship with you and your IASLC membership, which includes notifying you about changes to our Terms of Use or this Privacy Policy, thanking you for your support or sponsorship, asking you to provide feedback or take part in a survey, or contacting you to let you know if IASLC has taken any action following your feedback;
• administer and protect IASLC and the Site (including troubleshooting, data analysis, testing, system maintenance, support, reporting and hosting of data);
• use data analytics to improve the Site, products, services, events and marketing, and user, supporter and beneficiary relationships and experiences;
• deliver relevant content and advertisements to you, measure or understand the effectiveness of the advertising we serve to you, and make suggestions and recommendations to you about goods, services, or events that may be of interest to you, and keep you informed about IASLC and our charitable activities, campaigns, fundraising efforts, events, conferences, presentations, courses, programs, meetings and other activities of relevance; and
• process and deliver your orders, including to manage payments, fees and charges, and collect and recover money owed to us.

We and/or our third party marketing partners may use your information for other business purposes, such as data analysis, identifying usage trends, determining the effectiveness of our promotional campaigns and to evaluate and improve our Website, products, marketing and your experience. We may use and store this information in aggregated and anonymized form so that it is not associated with individual end users and does not include personal information. 

We may also use your personal data to contact you about IASLC and third-party (including sponsors and partners) goods services, and events that may be of interest to you. If you do not want us to use your information in this way, please follow the opt-out or unsubscribe links on any marketing message sent to you or contact us at info@iaslc.org. For users located in the EEA, please see sections 13 (A), (B) and (D) below for more information about your rights with regard to marketing communications.

If we make material changes to how we treat our users’ personal data, we will notify you by email or through a notice on the Site’s home page. For users located in the EEA, please see section 13(A) below for more information about the ways IASLC plans to use your personal data, which of the lawful bases IASLC relies on to do so, and how IASLC will notify you in the event it makes changes to how it treats your personal data. 

How IASLC discloses your personal data

IASLC may disclose information that does not identify any individual, including Aggregated Data, without restriction. 

IASLC may disclose personal data that it collects or you provide as described in this Privacy Policy to:

• IASLC’s subsidiaries and affiliates;
• other non-profit lung cancer advocacy or research organizations and individuals IASLC partners with; 
• sponsors, exhibitors, attendees, and other third parties when you register for events, conferences, presentations, courses, programs, meetings and other IASLC activities, including through registration or attendee lists distributed at such events;
• contractors, service providers, and other third parties we use to support IASLC; and
• a buyer or other successor in the event of a merger, divestiture, restructuring, reorganization, dissolution, or other sale or transfer of some or all of IASLC’s assets, whether as a going concern or as part of bankruptcy, liquidation, or similar proceeding, in which personal data held by IASLC about users is among the assets transferred. IASLC may seek to acquire other organizations or merge with them. If a change happens to our organization, then the new owners may use your personal data in the same way as set out in this Privacy Policy. 

IASLC may also disclose your personal data to comply with any court order, law, or legal process, including to respond to any government or regulatory request.

For more information about how IASLC discloses personal data of individuals located in the EEA, please see section 13(B) below.

Choices about how IASLC uses and discloses your personal data

We strive to provide you with choices regarding the personal data you provide to us.

We have created mechanisms to provide you with the following control over your information. For more information about how we provide choices about how IASLC uses and discloses personal data of users in the EEA, please see sections 13 (A), (B) and (D) below. 

• You can set your browser to refuse all or some browser cookies, or to alert you when cookies are being sent. If you disable or refuse cookies, please note that some parts of the Site may then be inaccessible or not function properly.
• You can ask us to stop sending you marketing messages at any time by following the opt-out or unsubscribe links on any marketing message sent to you or by contacting us at any time at info@iaslc.org. Where you opt out of receiving these marketing messages, this may not apply to personal data provided to us as a result of a purchase or other transaction.

We do not control third parties’ collection or use of your information to serve interest-based advertising; however, these third parties may provide you with ways to choose not to have your information collected or used in this way. You can opt out of receiving targeted ads from members of the Network Advertising Initiative (“NAI”) on NAI’s website. 

Please note that the Site does not respond to browser Do Not Track signals at this time.

Your California Privacy Rights

California Civil Code Section 1798.83 permits users of our Site that are California residents to request certain information regarding our disclosure of personal data to third parties for their direct marketing purposes. To make such a request, please send an email to info@iaslc.org.

Accessing and correcting your personal data

You may send IASLC an email at info@iaslc.org to request access to, correct or delete any personal data that you have provided to IASLC. IASLC may not be able to delete your personal data except by also deleting your user account. IASLC may not accommodate a request to change information if it believes the change would violate any law or legal requirement or cause the information to be incorrect.

Please note that if you delete, or if you request that IASLC delete, your personal data, copies of your personal data may remain viewable in cached and archived pages, or might have been copied or stored by other Site users, event attendees, exhibitors, sponsors, or other third parties.

Data security

IASLC has put in place security measures designed to prevent your personal data from being accidentally lost, used or accessed in an unauthorized way, altered or disclosed. In addition, IASLC limits access to your personal data to those employees, agents, contractors and other third parties who have a business need to know. They will only process your personal data on IASLC’s instructions and they are subject to a duty of confidentiality. IASLC has put in place procedures to deal with any suspected personal data breach and will notify you and any applicable regulator of a breach where IASLC is legally required to do so.

Retention 

We will only retain your personal data for as long as reasonably necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, regulatory, tax, accounting or reporting requirements. We may retain your personal data for a longer period in the event of a complaint or if we reasonably believe there is a prospect of litigation in respect to our relationship with you.

To determine the appropriate retention period for personal data, we consider the amount, nature and sensitivity of the personal data, the potential risk of harm from unauthorized use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal, regulatory, tax, accounting or other requirements.

In some circumstances we will anonymize your personal data (so that it can no longer be associated with you) for research or statistical purposes, in which case we may use this information indefinitely without further notice to you.

Changes to our Privacy Policy

It is IASLC’s policy to post any changes we make to our Privacy Policy on this page. If we make material changes to how we treat our users’ personal data, we will notify you either by email to the email address specified in your account and/or a notice on the Site’s home page. The date the Privacy Policy was last revised is identified at the top of the page. You are responsible for ensuring we have an up-to-date active and deliverable email address for you, and for periodically visiting the Site and this Privacy Policy to check for any changes.

Please see section 13(A) below for more information about how IASLC notifies users located in the EEA with regard to changes made to this Privacy Policy.

Contact information

To ask questions or comment about this Privacy Policy and our privacy practices, please contact us at info@iaslc.org.

Personal data subject to GDPR

The following terms apply to the extent IASLC processes personal data of data subjects in the EEA or data that is otherwise subject to the EU General Data Protection Regulation (2016/679) (“GDPR”) and laws and regulations implementing or supplementing the GDPR. The following terms explain how IASLC collects and processes data subjects’ personal data as a data controller if personal data is provided or disclosed by a data subject or if data subjects’ personal data is received or acquired through a third party. IASLC processes such personal data in accordance with the GDPR and laws and regulations implementing or supplementing the GDPR, to the extent applicable.

Processing of personal data under this section 13 means processing of personal data of persons who are in the EEA in any of the following cases: (i) if related to the offering of goods or services to such data subjects, or (ii) if related to the monitoring of a data subject’s behavior as far as their behavior takes place within the EEA.

A. Lawful basis for processing your personal data

When IASLC uses your personal data, it relies on various different lawful bases depending on what personal data it processes and why. The lawful bases IASLC may rely on include:

• Where you have given IASLC clear consent to process your personal data for a specific purpose (consent);
• Where IASLC’s use of your personal data is necessary for a contract it has with you, or because you have asked IASLC to take specific steps before entering into a contract (contract);
• Where IASLC’s use of your personal data is necessary for us to comply with the law (not including contractual obligations) (legal obligation); and/or
• Where IASLC’s use of your personal data is necessary for IASLC’s legitimate interests or the legitimate interests of a third party (unless there is a good reason to protect your personal data which overrides IASLC’s legitimate interests) (legitimate interests).

Please see below a description of all the ways IASLC plans to use your personal data, and which of the lawful bases it relies on to do so. Note that IASLC may process your personal data for more than one lawful ground depending on the specific purpose for which it is using your data. Please contact IASLC if you need details about the specific legal ground IASLC relies on to process your personal data where more than one ground has been set out in the table below.

Please note that you may receive marketing communications from IASLC if you have requested information from us, purchased merchandise or services from us, or registered for an event, and you have not opted out of receiving that marketing. We will get your express opt-in consent before we share your personal data with any third party for marketing purposes.

You can ask us to stop sending you marketing messages at any time by following the opt-out or unsubscribe links on any marketing message sent to you or by contacting us at any time at info@iaslc.org. Where you opt out of receiving these marketing messages, this may not apply to personal data provided to us as a result of a purchase, event registration, or other transaction.

As mentioned in section 4 above, you can set your browser to refuse all or some browser cookies, or to alert you when websites set or access cookies. If you disable or refuse cookies, please note that some parts of the Site may become inaccessible or not function properly. For more information about the cookies we use, please visit our Cookie Policy.

We will only use your personal data for the purposes for which we collected it, unless we reasonably consider that we need to use it for another reason and that reason is compatible with the original purpose. If you wish to get an explanation as to how the processing for the new purpose is compatible with the original purpose, please contact us at info@iaslc.org.

If we need to use your personal data for an unrelated purpose, we will notify you and we will explain the lawful basis which allows us to do so.

Please note that we may process your personal data without your knowledge or consent where required or permitted by law.

B. More information about how IASLC discloses your personal data

We may share your personal data with the parties set out below for the purposes set out in the table above:

• Our subsidiaries and affiliates, some of which may be in the United States;
• Service providers, contractors, and other similar third parties, some of which may be in the United States, that we use to support IASLC; 
• Other non-profit lung cancer advocacy or research organizations and individuals IASLC partners with, some of which may be in the United States; 
• Sponsors, exhibitors, attendees, and other third parties when you register for events, conferences, presentations, courses, programs, meetings and other IASLC activities, including through registration or attendee lists distributed at such events, some of whom may be located in the United States; and
• A buyer or other successor in the event of a merger, divestiture, restructuring, reorganization, dissolution, or other sale or transfer of some or all of IASLC’s assets, whether as a going concern or as part of bankruptcy, liquidation, or similar proceeding, in which personal data held by IASLC about users is among the assets transferred. IASLC may seek to acquire other organizations or merge with them. If a change happens to our organization, then the new owners may use your personal data in the same way as set out in this Privacy Policy.

We require all subsidiaries, affiliates and third parties to respect the security of your personal data and to treat it in accordance with the law. We do not allow our third-party service providers to use your personal data for their own purposes and only permit them to process your personal data for specified purposes and in accordance with our instructions.

It may be necessary for us – by law, legal process, litigation, and/or requests from public and governmental authorities within or outside the data subject’s country of residence – to disclose personal data. We may also disclose personal data if we determine that, for purposes of national security, law enforcement, or other issues of public importance, disclosure is necessary or appropriate.

We may also disclose personal data if we determine in good faith that disclosure is reasonably necessary to protect our rights and pursue available remedies, enforce our internal regulations, investigate fraud, or protect our operations or users. 

C. International transfers

Our systems and servers are managed in the United States. Please be aware that your information may be transferred to, stored, and processed by us in our facilities and by those third parties with whom we may share your personal information, in the United States and other countries.

If you are a resident in the European Economic Area, then these countries may not necessarily have data protection laws or other similar laws as comprehensive as those in your country. We will however take all necessary measures to protect your personal information in accordance with this privacy notice and applicable law.

Please contact us if you want further information on the specific mechanism used by us when transferring your personal data out of the EEA.

D. Your rights under GDPR

Under certain circumstances, you may have certain rights under EU data protection laws in relation to your personal data, including to:

• Request access to your personal data (commonly known as a data subject access request). This enables you to receive a copy of the personal data we hold about you and to check that we are lawfully processing it.
• Request correction of the personal data that we hold about you. This enables you to have any incomplete or inaccurate data we hold about you corrected, though we may need to verify the accuracy of the new data you provide to us.
• Request erasure of your personal data. This enables you to ask us to delete or remove personal data where there is no good reason for us continuing to process it. You also have the right to ask us to delete or remove your personal data where you have successfully exercised your right to object to processing (see below), where we may have processed your information unlawfully or where we are required to erase your personal data to comply with local law. Note, however, that we may not always be able to comply with your request of erasure for specific legal reasons which will be notified to you, if applicable, at the time of your request.
• Object to processing of your personal data where we are relying on a legitimate interest (or those of a third party) and there is something about your particular situation which makes you want to object to processing on this ground as you feel it impacts your fundamental rights and freedoms. You also have the right to object where we are processing your personal data for direct marketing purposes. In some cases, we may demonstrate that we have compelling legitimate grounds to process your information which override your rights and freedoms.
• Request restriction of processing of your personal data. This enables you to ask us to suspend the processing of your personal data in the following scenarios: (i) if you want us to establish the data’s accuracy; (ii) where our use of the data is unlawful but you do not want us to erase it; (iii) where you need us to hold the data even if we no longer require it as you need it to establish, exercise, or defend legal claims; or (iv) you have objected to our use of your data but we need to verify whether we have overriding legitimate grounds to use it.
• Request the transfer of your personal data to you or to a third party. We will provide to you, or a third party you have chosen, your personal data in a structured, commonly used, machine-readable format. Note that this right only applies to automated information which you initially provided consent for us to use or where we used the information to perform a contract with you.
• Withdraw consent at any time where we are relying on consent to process your personal data. However, this will not affect the lawfulness of any processing carried out before you withdraw your consent. If you withdraw your consent, we may not be able to provide certain products or services to you. 

You will not have to pay a fee to access your personal data (or to exercise any of the other rights). However, we may charge a reasonable fee if your request is clearly unfounded, repetitive or excessive. Alternatively, we may refuse to comply with your request under these circumstances.

We may need to request specific information from you to help us confirm your identity and ensure your right to access your personal data (or to exercise any of your other rights). This is a security measure to ensure that personal data is not disclosed to any person who has no right to receive it. We may also contact you to ask you for further information in relation to your request to speed up our response.

We try to respond to all legitimate requests within one month; however, it may take us longer than a month if your request is particularly complex or you have made a number of requests. In this case, we will notify you and keep you updated.

E. Complaints

IASLC hopes that it can resolve any query or concern you raise about IASLC’s use of your information. The GDPR also gives you the right to lodge a complaint with a supervisory authority, in particular in the European Union (or EEA) state where you normally live or where any alleged infringement of data protection laws occurred.